Tracy's Story

“I am so grateful to Lymphoma Action for their support at every stage in my experience with lymphoma. I genuinely don't know what I would have done without them.

I was diagnosed with diffuse large B-cell lymphoma after having a seizure at home. Prior to this, I had experienced a strange popping sensation in my head, but I’d had none of the ‘regular’ symptoms of lymphoma.

After completing my last course of chemotherapy, I was told I was in remission. Returning to ‘normal’ was quite a challenging time for me mentally. I found it difficult to get my head around having to be vigilant for symptoms while trying to live life to the fullest.

I wasn’t aware of what lymphoma was until my diagnosis. I didn’t know anyone who’d had it and I felt very much alone. But I was given a Lymphoma Action booklet when I was diagnosed and from that day on, I’ve had so much support and information from the Charity. I read about my condition on Lymphoma Action’s website and that helped me to feel more informed about my diagnosis. I also joined the Facebook Support Group as I wanted to connect with others who were in a similar position and could possibly hold my hand through it – even if that was on a virtual basis. I went on to join an Online Support Meeting and that social connection felt really important, as I could ask questions and connect to people who knew what I was going through.

I am so grateful to Lymphoma Action for their support at every stage in my experience with lymphoma. I genuinely don’t know what I would have done without them.

Read Tracy's story in full
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