Goal four: People affected by lymphoma know who we are and contribute to our collective voice
“When I was told I might have lymphoma, I had no idea that this meant cancer. The symptoms I was experiencing weren’t immediately making me think I could have cancer either and I can see how someone with those symptoms might not seek help. Raising awareness about blood cancer is so important.
We raised awareness about lymphoma in the media, including articles featured in eight magazine titles, a segment on daytime television, and news interviews on both national and regional broadcast channels with supporters and spokespeople.
1,237 people took part in our Let’s talk lymphoma campaign during Blood Cancer Awareness Month, requesting our campaign packs to spread the word about lymphoma to family, friends and colleagues.
online views of our symptoms information
Over 63,700 people now follow us across our social media platforms. We sent over 5,750 messages on social media offering support and signposting to our trusted information in response to the needs of our community, engaging with policymakers and our healthcare and charity partners, and thanking our amazing #TeamLymphoma fundraisers.
We published 35 personal stories on our website from people sharing their experience of lymphoma to support others and raise awareness. Work also began on a new lived experience film, due for release in 2026.
We worked collaboratively with our partners to support developments in the diagnosis, treatment and care of lymphoma by:
- Campaigning as part of the One Cancer Voice coalition of charities for a comprehensive, fully funded National Cancer Plan that includes the essential steps required to tackle cancer effectively.
- Representing the patient experience through responses to 13 Health Technology Assessments (HTAs) with the National Institute for Health and Care Excellence (NICE), and two with the Scottish Medicines Consortium (SMC). Seven treatments went on to receive a positive recommendation (five with NICE and two with the SMC).
- Continuing to support the National Cancer Audit Collaborating Centre (NATCAN) with the National Non-Hodgkin Lymphoma Audit (NNHLA).
- Starting work with the NHS England Cancer Programme, Leukaemia UK and Myeloma UK in the development of a Best Practice Timed Pathway for blood cancers, including lymphoma.
- Representing people affected by lymphoma at industry partner meetings, at patient and charity forums and in key working groups.
- Presenting our HTA work at the Lymphoma Coalition global summit.
- Supporting patient and public involvement in several projects including the UK Blood Cancer Biobank and SEARCH (a lung cancer screening project for people who have had lymphoma).
