Goal four: Be a voice for people affected by lymphoma to influence the decisions that affect them.
“As someone who has lymphoma it's so important that more people are aware of this type of cancer and how much it can overwhelm you.
We raised awareness about lymphoma in the media, including articles featured in seven magazine titles and an interview with one of our supporters on national TV.
We joined TikTok, expanding our presence on social media and increasing our reach to spread the word about lymphoma, signs and symptoms and support available.
Total followers across all of our social media platforms
Our Let’s talk lymphoma campaign for Blood Cancer Awareness Month (BCAM) in September ran for its second consecutive year. Engagement with the campaign, which aims to raise awareness of lymphoma and its symptoms, was double compared to its launch year in 2023.
We supported developments that would improve outcomes in treatment and care through our involvement with the National Cancer Audit Collaborating Centre (NATCAN) in conducting the first National Non-Hodgkin Lymphoma Audit (NNHLA) to evaluate the patterns of care and outcomes for people diagnosed with non-Hodgkin lymphoma in England and Wales.
We represented the patient experience through responses to 15 Health Technology Assessments (HTAs) with the National Institute for Health and Care Excellence (NICE), and six with the Scottish Medicines Consortium (SMC). 10 went on to receive a positive recommendation (five for each respective body).
“Lymphoma Action have provided important input on a number of different activities. It’s very clear to the NATCAN team that the fantastic support which we have received from them has been a key highlight for us.
We worked collaboratively with our partners to represent the issues that matter to people affected by lymphoma by:
- Working as part of the Blood Cancer Alliance, Cancer52 and the One Cancer Voice coalition in responding to the 10 Year Health Plan consultation and in calls on the Government to improve cancer care.
- Representing people affected by lymphoma at industry partner meetings, at patient and charity forums and in key working groups.
- Becoming associate members of the Northern Ireland Cancer Coalition which launched in June.
- Sharing best practice with the Lymphoma Coalition as part of their global summit.
